I just wanted to post an update about Keegan's cylex function that we received this week. This is the test to determine how his immune system is functioning. Keegan's level came in at "low" which means his immune system is very suppressed. ...
As expected, yesterday's clinic visit was pretty rough, but all in all, things are still looking good. Chest x-ray and EKG were fine as usual. His labs were good; no changes to meds except to stop his epogen shot because his hemoglobin was...
Keegan went to see Dr. Lestz today for his 4-month "well baby" check-up. She was so excited to see how well he was doing. When we told her that Dr. Fixler said to treat him as a healthy baby for feeding/sleeping/developmental milestones, she...
Yesterday was our first "every other week" clinic visit. Although, we ended up going last week for a bit anyway. It went very well. He weighed in at 11.2 pounds again, but it was a different scale. He could have gained...