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November 2008

27 Nov

Posted at 00:07h in Uncategorized by
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Keegan started his enzymes last night. It will take 4 to 7 days for them to begin to work. We've taken him off the antispasmodic to see exactly how he does with the enzymes. The biopsies from his recent scopes were normal,...

25 Nov

Posted at 01:26h in Uncategorized by
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Keegan had a pretty good weekend. The blood he got on Friday really helped give him some more energy. It also brought his heartrate and blood pressure down some. The antispasmodic drug that GI started him on reduced the frequency of his stools into the...

22 Nov

Posted at 05:25h in Uncategorized by
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Just a quick note with what we've learned since yesterday's procedures. Keegan's hematologist/oncologist, Dr. Rodgers, said there is no evidence of post-transplant lymphoma in his bone marrow, which is great. We will still wait for his scope biopsies before completely ruling it out, but we're...

21 Nov

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Keegan did well throughout his procedures today, and we may have a glimmer of hope for an answer finally! First, they repeated his upper endoscopy. They noted some flattening of the villa in the stomach that help digest the food, which can be...

19 Nov

Posted at 04:12h in Uncategorized by
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We had a care conference this morning with Keegan's transplant team, GI doctors, and hematologists. We have scheduled him for another upper endoscopy/colonoscopy on Thursday at 7:30am. Keegan has had blood in every dirty diaper since Friday, and GI believes it's coming from his lower...

17 Nov

Posted at 01:46h in Uncategorized by
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We've had a mostly quiet weekend for Keegan, again in the "two steps forward, one step back" fashion of recent weeks. He is still having on average 14 dirty diapers a day, and most of them have had blood in them for the last...

14 Nov

Posted at 20:08h in Uncategorized by
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Keegan has had quite a few ups and downs the last few days. His fever has broken; he's gained a touch of weight, and he has had a good attitude most of the time. The cystic fibrosis bloodwork came back negative, and his blood counts...

12 Nov

Posted at 03:22h in Uncategorized by
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Good news first - Keegan had fewer number of dirty diapers and a bit of weight gain between the last two days. The dirty diapers aren't any less scary unfortunately, but we are happy for any bit of good news. The bad news is that...

11 Nov

Posted at 00:46h in Uncategorized by
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Well, what did I say about not saying the "h" word until we were actually on our way there? Keegan lost a bit of weight over the weekend. Not enough to be terribly concerned, but it's not positive weight gain either. The doctors would like...

09 Nov

Posted at 00:23h in Uncategorized by
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This weekend is an official "Leave Keegan Alone" weekend. No poking, no labs, just see how he does over the weekend. Mainly, we'd like to see him gain some more weight, lessen his diarrhea, and at least have stable blood counts on Monday. I think...