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December 2008

30 Dec

Posted at 00:13h in Uncategorized by
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We just made it home a little while ago. Keegan had just enough energy to play while I set up his home pumps and then crashed for another nap. He still has not gotten used to his car seat or crib again, but...

29 Dec

Posted at 18:12h in Uncategorized by
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Keegan slept pretty well overnight. His fever is still gone, but he continues to throw up and have bad diapers. The diapers are the most frustrating for us because they look exactly like they did before we started getting results with the enzymes...

28 Dec

Posted at 20:08h in Uncategorized by
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Keegan had an ok day yesterday. He spent most of the day asleep, catching up from the last few nights. He hadn't thrown up since the night before in the ER, but he was having some pretty bad diarrhea again. When he...

27 Dec

Posted at 20:07h in Uncategorized by
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So, here we are back at Children's. We had been meaning to update again, but we've been pretty busy with Christmas and trying to get organized at home. Keegan has been throwing up at least twice a day since we came home, and his dirty...

24 Dec

Posted at 18:50h in Uncategorized by
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Keegan is HOME!! Yesterday was very stressful and didn't go nearly as planned, but we made it home nonetheless. We got here by about 7pm. Keegan was scared to death of being in his car seat, but hopefully, he'll get used to...

23 Dec

Posted at 18:19h in Uncategorized by
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Ok, so very quick update. Yesterday things started spiraling out of control, putting us to Christmas Eve or after Christmas for going home. Keegan threw up 3 times; his diapers were questionable, and it appeared insurance was not going to cover his TPN...

20 Dec

Posted at 20:51h in Uncategorized by
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I've definitely jinxed it. Our new "outta here" date is Tuesday. We've had some delays getting the home TPN/lipids pumps delivered and getting all his meds ordered and delivered, among other general issues. As we learned at Thanksgiving, getting anything done during...

19 Dec

Posted at 01:26h in Uncategorized by
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I hate to even put this in writing because I know I'm jinxing it, but the transplant team said this morning we're looking at Monday for going to the "h-word"!!! We shall see, but it's encouraging nonetheless. Not a lot of changes other than that....

16 Dec

Posted at 03:02h in Uncategorized by
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Another pretty good day for Keegan, and we are hoping that we're not imagining that light at the end of the tunnel! The transplant team is at least confident enough to start getting his home healthcare lined up. Then we just have to pull the...

13 Dec

Posted at 20:58h in Uncategorized by
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Not much new to report today. We finally got access to the picture site this morning, although I’m pretty sure it’s a fluke. I was told at a hospital committee meeting that they are working on getting the networks ironed out, but it...