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January 2009

16 Jan

Posted at 23:30h in Uncategorized by
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Keegan is being a very, very strong little boy. Yesterday, he had even more diarrhea than before on his fifth day of being on gut rest. We have not been able to get a good sample for the last remaining stool studies, but...

15 Jan

Posted at 23:19h in Uncategorized by
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Again, no true news to report today, but a few changes. First of all, we are no longer on our beloved cardiac floor. It was a truly difficult decision to make to transfer Keegan to the GI service and therefore, the GI floor....

14 Jan

Posted at 01:34h in Uncategorized by
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Unfortunately, I don't have a lot of news to report at this time. Keegan has not had what we'll call a "pain episode", for lack of a better term, since last night. He seems in much better spirits today, albeit still rather tired...

12 Jan

Posted at 16:15h in Uncategorized by
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Keegan was admitted at Children's downtown again last night. He spiked a very high fever around 3pm, and the transplant team sent us to the downtown ER to be admitted by hem/onc. We spent way too long in the ER but finally got...

10 Jan

Posted at 05:05h in Uncategorized by
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We didn't want our friends and family to worry for lack of posting. We had a very encouraging visit with GI yesterday. We truly feel this new doctor is looking at Keegan's case with fresh eyes. He has some good ideas, but...

08 Jan

Posted at 01:07h in Uncategorized by
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I just wanted to post a quick update to ask for your prayers for Keegan. He is struggling with his stools, and his diaper area is terribly irritated because of it. His liver function was very concerning in today's labs, and his GI...

05 Jan

Posted at 00:38h in Uncategorized by
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I'm so sorry for the lack in posts. To say we have been crazy busy just trying to get our feet on the ground here would be the understatement of the week! We've had so much help from friends and family watching Keegan...