April 2009

I was intending to post a better update tonight, but the screen is wearing on my eyes. We are still about 2 hours from Nashville, and Keegan is fast asleep. He has been an absolute trooper today, although we're pretty sure his brain...

Quick because we are PACKING!!! That's right, Keegan got the thumbs-up (although I wish it were a bit more enthusiastically) to go home tomorrow. There were tidbits of questionable things here and there, but if we waited until all those were resolved, Keegan...

This has been a little bit of a difficult week to coordinate biopsy results because our cardiologist in Boston is out of town for a conference while our gastroenterologist is on service (the doctor for GI patients in the hospital). Keegan's liver enzymes in...

We weren't able to get in to see Dr. Kamin until 4:30pm today, and we didn't get labs drawn until after that. In fact, we didn't get "home" until almost 7pm from the hospital. Luckily, we spent the very nice morning touring Boston...

Keegan's follow-up appointment was pushed to tomorrow. Monday was a state holiday (Patriot's Day, running of the Boston Marathon), so the hospital was actually closed. Preliminary reports from Keegan's liver biopsy came back this afternoon, but we don't know much about them. Our doctor said...

UPDATE 4pm - We just arrived at the apartment. Keegan seems to be doing ok so far. We will be going in Tuesday for clinic and labs, so we'll update again then. Thank you again. Keegan got the green light for discharge...

We met with the doctor a little while ago. They don't know why Keegan's not bouncing back like he usually does after a procedure. He has been on pedialyte only all night because we got to our room after the formula lab had...

UPDATE 4/18/09: Keegan slept ok after some benadryl to ease the itch. Thank God we cut his fingernails yesterday morning because he was ripping at his skin. He continues to be unusually fussy this morning and has had several bouts of really bad...

Keegan's labs were redrawn this morning, and he is scheduled for a liver biopsy and changing of his g-tube tomorrow at 1pm. Both of these procedures will be done in Interventional Radiology and will require general anesthesia and an overnight admittance for observation. ...