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March 2011

31 Mar

Posted at 03:36h in Uncategorized by
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Long day today.  Keegan had an MRI and MRA of his brain performed around noon.  He handled anesthesia well and came back up to the room around 2pm, only to be shuttled back off for an echo and bubble study of his heart about 30...

30 Mar

Posted at 03:38h in Uncategorized by
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I'm struggling to write this update because I really can't believe we're sitting here once again inpatient.  Yes, inpatient, and I really don't even want to put into writing why.  We are waiting here overnight for Keegan to have an MRI and MRA tomorrow morning...

28 Mar

Posted at 18:05h in Uncategorized by
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Information from Aunt Alex on our team, K's for Keegan, for Keep the Beat, the 1st annual It's My Heart walk to raise awareness and funds for congenital heart defects:Hello Friends,It’s My Heart is a non-profit organization created to provide support to and advocating for...

28 Mar

Posted at 03:18h in Uncategorized by
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Technically, we've been home since last Wednesday evening, so I suppose this update is about four days overdue.  Trying to adjust our schedules and keep up with Keegan's medical issues has kept us pretty busy since we arrived home.  Keegan is doing okay.  Could definitely...

23 Mar

Posted at 03:17h in Uncategorized by
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It looks like we're wrapping up this inpatient stay, although not nearly in the positive way that we would like.  Ideally, the doctors don't like to send patients home on TPN, but we're not really in an ideal situation here.  Gray and I said over...

22 Mar

Posted at 04:05h in Uncategorized by
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Well, try as we might, we couldn't keep Monday from coming again.  Funny how it always seems to come around this time of week.  Bummer.Evidently, Keegan's tummy is not fond of Mondays either.  We stayed the course.  We made no changes, and yet, today was...

21 Mar

Posted at 01:37h in Uncategorized by
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After yesterday's set-back, the decision was made today to hold Keegan's tube feeds at 10cc/hour for the next few days.  It will take another variable out of the overall equation, so we should have a better idea how the drugs are/aren't helping him.  The more...

20 Mar

Posted at 03:59h in Uncategorized by
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In order to refocus my energy this evening, I'm going to start this post with the FUN parts of our Saturday.After 10 LONG days, we finally got to see this little beauty today!Miss A is definitely cutting those top teefers.  Poor thing, she's only pushed...

19 Mar

Posted at 02:56h in Uncategorized by
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I'm going to make this short because it's Gray's night at the hospital, and I'm very much looking forward to crawling into my own bed tonight!  Ironically, I had to download a white noise app on my phone because the stark silence of an empty...

18 Mar

Posted at 04:10h in Uncategorized by
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By the end of today, Keegan had rolled into day 9 of this current illness (a week inpatient).  Starting off with the bad news for today.  His platelet and hemoglobin/hematocrit continued to drop today, but at least his ANC (baby white cells) were up just...