Keegan came home late last night. He had some significant bleeding and pain from the biopsies, and he didn't sleep too well. Today showed an improvement in his energy levels, if nothing else. He had labs drawn this afternoon, but we don't have results from...
Keegan was admitted to the hospital just after lunctime today to prepare him for his upper endoscopy and colonoscopy tomorrow. In an attempt to provide a better picture of his colon, he is being given a solution through his g-tube to "clean him out." This...
A week ago, the "Easter Bunny" (aka Aunt Alex, who graciously borrowed a costume and played along) came to dye Easter eggs with Keegan. Very excited to make the dye...
At the risk of sounding redundant, I'm not sure where to start this post and apologize for not doing so earlier. (Oh, that was redundant? Well...
Witness the booty-scootin' talent of one Audrey Harrison. And to think, I figured she would be the normal one! She also seems to have inherited my habit of biting my lip while concentrating. I'm so sorry, ladybug. Make video montages at www.OneTrueMedia.com...
I kinda wish I knew how to start this update. It was not the best of days today.We started with the upper GI and small bowel follow-through. That was only after a very long, sleepless night by all four members of our family. But I...
That's my general sentiment at the end of just about everyday and when sitting down to think about writing this post! The "plan" from the last update is still in place, but not all the pieces have been set into motion yet. Here's a little...
Today was quite productive in getting a plan put in place for addressing Keegan's GI problems. We started bright and early with a phone conference with our team in Boston. After tossing around some ideas with our GI doctor there, he contacted our doctor here...
Poor Miss A seems to get left out of this little corner of the bloggy world too often. It's almost always about Keegan, and when time alots, well...
I really, really do promise that one day soon I will have time to sit down and write an update that is in depth and detailed. After getting the kids down, eating dinner, cleaning up, pulling meds, making formula, mixing TPN and lipids, hooking Keegan...