23 May Best laid plans
Keegan has rewritten this legendary poem...
May 2011
21 May Round 3
It appears we may be destined to spend every weekend in May in the hospital with Keegan. This will be our third weekend, only one left to go. Bleh.Keegan woke up around 3am. He wasn't fussy or upset, just restless and awake. I left him...
19 May PICC and BP
A jumble of letters today.Keegan successfully had a PICC line placed in his right arm on Tuesday. So far, it is working and still in place, but it is also bleeding into the line when not in use. It is not bleeding into the dressing...
17 May PICC
Keegan will have a PICC line placed tomorrow morning. This is a more temporary central line that will come out Keegan's arm. It is placed via the interventional radiology team, not surgery. It will require anesthesia however (I believe this will be the 35th time...
15 May Update & Graft-vs-Host Disease
I'm so very creative with my post titles, huh?Keegan's had an ok day. He struggled with his fever all night, but regularly scheduled tylenol has kept it down today. We are out of the first 24-hour period with no growth on the blood cultures. We...
14 May Three days
A lot can happen in three days. Keegan is back in the hospital for one thing. Dang it.The last two days he has been rather lethargic. He was refusing to get out of bed in the mornings, spending most of the morning cuddled in the...
14 May Famous
How nice to open the most recent fundraising letter from Children's and see Keegan's face smiling out at us! It was another well-written version of Keegan and Johnston's story.You can read it by clicking HERE.Ironically, we also got the paper version of this newsletter in...
12 May Home again, home again
Just a quick post tonight to say Keegan was discharged late Monday afternoon from the hospital. (Yes, I'm well aware that today is Wednesday. Thank you.) The bleeding from his port and into the line has slowed but not stopped. Keegan's blood counts came up...
09 May Maybe tomorrow
Maybe tomorrow Keegan will get to go home. We are still having some strange issues and continued bleeding from his port but not nearly as bad as before. We have polled everyone from surgery to oncology looking for ideas as to what could possibly be...
08 May Still Here
Keegan is still inpatient. We were able to get his port working last night after busting out a clot that was in there, likely from all the bleeding. That allowed us to use it to run his TPN overnight, but it didn't address the bleeding...