The word that rolls most frequently off my tongue and through my mind right now is IF. So, I'm not sure entitling this post "what we know" is a good idea because frankly, we don't know a lot of things, or anything for that matter,...
We are still at home. A weekend at home together. It was nice to be able to say that again. Keegan has been home for four whole days, and we're hoping to stay here for a little bit at least. He has his good moments...
It was a very long day with a lot of information to process. The team kinda wanted to keep him another day, but we decided to come home tonight. Even though it was another rush-hour discharge that brought us home right before bedtime.Keegan's heart function...
We finally got an IV in Keegan's left hand after a good dose of valium. Labs, 2 x-rays, and an initial surgical consult later, he was finally asleep for the night around midnight. At one point, the IV team looked up as he fought them...
I couldn't make this you-know-what up if I tried! A short recap of the last four days:FRIDAY: In the morning, I went to the dermatologist due to what appeared to be a breakout of hives all over my torso. To be sure it wasn't infectious...
Keegan is not necessarily doing any better. A few more smiles today and much less bleeding. But we did decide to bring him home this afternoon. We know that giving him blood would make him feel better, but his counts have been stable the last...
Another quick update again tonight. I am going home tonight to get ready for a presentation I'm giving to the Executive Committee of the Solid Organ Transplant Center here at Children's tomorrow. If I get approval from the Center's leadership, the program will be a...
I don't really have the energy for a big post tonight. Just wanted to say that Keegan did have another colonoscopy today. They didn't see a lot visually throughout his colon and intestines. However, the tissue is so sensitive over time that he suffered a...
Keegan was, as we said earlier, admitted back to the hospital yesterday morning. He struggled through Audrey's party and really declined quickly overnight. He maintained a 103+ degree fever throughout the night and started retching and throwing up in the middle of the night. Evidently,...
I would say Audrey's first birthday party was really wonderful. We were all so happy to be together, and she just absolutely was the star of the show. I wish Keegan had felt better and been able to enjoy himself. All in all though, we...