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August 2011

30 Aug

Posted at 18:13h in Uncategorized by
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I hesitate to even say it, but it looks like we are good for Boston tomorrow.  I just got a call from the transplant cardiologist there (yes, the actual doctor!), and she said they are ready for Keegan.  The rest of the day will be...

29 Aug

Posted at 05:02h in Uncategorized by
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I realized my last post probably didn't make much sense unless you happen to keep up with our twitter or Facebook feeds.  I intended to write a nice, well thought out post tonight.  However, Keegan has been moaning/crying/rolling around in what might be GI pain...

28 Aug

Posted at 05:29h in Uncategorized by
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Just a quick note to say Keegan is back at home while we wait on hurricane Irene to clear the east coast. Insurance approval for travel is complete. (Yippee!!) if not for the storm, we would be in Boston by now. The goal is...

25 Aug

Posted at 04:10h in Uncategorized by
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Remember how I mentioned in the last post that if the fever went any longer, we would be in uncharted territory?  Well, welcome to the wild.  If we felt lost before, that feeling is magnified tenfold as this fever has started to morph in front...

23 Aug

Posted at 04:03h in Uncategorized by
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Today marked another day of fever for Keegan.  Last night was not easy on him.  Consistently in the 103s.  After another IV tylenol dose at 6am, he "simmered" at 99-100.5 all day.  At bedtime, he was at 100.8.  This was a marked change from all...

22 Aug

Posted at 15:44h in Uncategorized by
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Dear Family and Friends of the Harrison Family,  We have decided that it will be extremely beneficial if we extend the Care Calendar to resume providing meals for the Harrisons.  As we mentioned before, our family is well aware that having meals provided even when...

22 Aug

Posted at 04:01h in Uncategorized by
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I miscalculated last week.  Keegan's fever this weekend is the 11th overall.  The 6th since we started the steroid pulse.  It seems to have been about the same as last weekend's so far.  There was a few hours earlier today where we got pretty worried...

18 Aug

Posted at 04:05h in Uncategorized by
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A state of uncertainty.I'm not exactly sure what I should or can update about at this point.  Nothing is really certain.  We don't know anything new.  The fact that we don't have a single doctor/specialty that is the "owner" of Keegan's issues has become more...

16 Aug

Posted at 04:18h in Uncategorized by
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I wish I was ready to write a post about last week and our plan (or lack there of at this time), but honestly, Gray and I just had an opportunity to really hash it all out between ourselves last night.  We were too preoccupied...

13 Aug

Posted at 04:29h in Uncategorized by
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Ok, so no one is really surprised, but Keegan's fever is back again. This is the 5th fever since we started the steroid pulse. Aside from the three week break at the beginning of the pulse, this is the 9th consecutive, weekly "mystery" fever. We...