First day of outpatient life in Boston went well. Labs, EKG, & clinic appointments were ok. I will update more tomorrow. Tonight, I am thankful for Rylynn's new heart and that my only alarm clock (besides Keegan waking up too early) is 9am meds!! Details...
Keegan was discharged from Children's Hospital Boston today after exactly 6 weeks inpatient. We are staying in a hotel locally for at least a week, possibly flying home as early as next Wednesday! More details tomorrow. We need to get some sleep for an early...
Not a lot new to share today. Keegan had a pretty quiet end/beginning of his week. His labs on Sunday continued on a track that makes us very antsy. Are we seeing the beginnings of another flare or a reaction to the IV iron from...
I apologize for the delay in posts. The last few days have been quite busy here in Boston, both with Keegan's care and discharge planning. Yup, you heard me right. Lest we get ahead of ourselves though, I should start with how Keegan has been...