The "how-long-Keegan's-been-home" clock has restarted and is now sitting at a week. His labs last week looked better, and Monday night was his last dose of IV antibiotics. Overall, he is doing pretty well and has gotten back into the groove of therapy and appointments....
Keegan's home.Our schedule for tonight:10:45pm - Start TPN11pm - Go to sleep1am - Give IV benadryl and start IV antibiotics; change diaper1:20am (if I'm lucky) - Go back to sleep3am - Stop antibiotics; flush and lock line with heparin; check diaper again.3:20am - Maybe go...
Today was better than yesterday, and for that, we are grateful. Keegan walked twice and went to the play room for 45 minutes. Much better than yesterday's 10 minutes. He is more even-keiled today also. I'm sure it helps that his heart rate finally came...
Keegan made it through day 3 of anesthesia and has a new central line to show for it. His surgeon said this was the smoothest line placement he has done on Keegan. Unfortunately, the team felt very strongly that Keegan should not have another port...
Another long day and one coming up tomorrow too. Not much energy or time to update tonight, as Keegan is very restless.Keegan made it to the scanner for an MRV (magnetic resonance venogram) of his torso and an MRA (magnetic resonance angiogram) and images of...
A long day. Keegan's old port is out, but it was a long, long day, indeed.We woke up this morning to a line that would flush and work but not draw blood. Hematology/oncology was consulted; they deemed the line safe to use, but we could...
As I mentioned briefly last night, the staph epi bacteria has resurfaced in Keegan's central line, which caused him to have another MAS flare. We have successfully kept the flare to a low roar with yet another steroid pulse. Unfortunately, the infection means that Keegan's...
That's what it looks like at this point. See post below for reference. We should know more tomorrow about a plan, so I will update with more detail then. Until then, this about sums up how Keegan and the rest of us feel at this...
Keegan spiked another fever last night and was admitted to the cardiac floor at Children's again this morning. His 32nd hospital stay in four years. This had been the longest Keegan was at home since October 2010. This fever cycle actually started Friday, but his...