Another fun February outing was our trip to the Frontiers of Flight Museum at Love Field. It wasn't crowded, plenty of entertainment for the kiddos, and more than enough flight and war memorabilia to keep Daddy happy too. Win-win-win! We may have even found a...
The Heard Museum in McKinney hosted a traveling exhibit of mechanical dinosaurs. They moved and made noise. Much to our surprise, Keegan loved it! He waved to the dinosaurs. He transitioned fairly easily between them, and he even tried to give the T.Rex some of...
We laid pretty low during the month of January. Flu season hit pretty badly in our area, and considering we had just come home from an intense inpatient stay, we tried to be as safe as possible. Here are a few photos I found on...
Once again I find myself way behind on posts. Oops.You may have seen on our little Twitter bar over there on the right last week that Keegan had his annual kidney testing on Tuesday, a GFR. A radioactive dye is injected into his bloodstream, and...
It's finally the last day of CHD Awareness week 2013. You know how the last day of Keegan's first week ended. With a miracle...
Hanging on to hope.That's what we were doing on day 7.It's amazing how strong and fleeting that emotion can be in the same instant.Luckily for us, our hope came that night in the form of an angel named Johnston.We were one of the lucky 40,000...
Our worst fears became reality on day 6 of Keegan's life. An echo done prior to an attempted wean of ECMO support showed that a hematoma on the ventrical septal wall of his heart had bled out. The only way Keegan could survive was if...
This is what we saw on the morning of day 5. And somehow things were ok for just one day...
On day 5, we finally started to see Keegan move his little hands and feet and were waiting anxiously for his eyes to open. Our biggest concerns were his kidneys, his lungs, and his brain. Keegan was officially listed as a status 1A on the...
Keegan on ECMO at three days oldThis picture doesn't require much annotation. Day three of Keegan's life was spent processing what new world we found ourselves slogging through. None of us remember much other than just the intense struggle just to keep breathing. We still...