Just a quick note to say we are all ok and still at home. Keegan's blood culture from the ER last Saturday (after the second chewing incident) grew back a type of strep that was rare enough that our transplant team hadn't ever heard of...
My brain is fried. Absolutely, positively fried. Here's why, and I think you'll understand. I'm going to do my best to make this make sense. Please forgive me if it doesn't.FRIDAY:We spent all day preparing for discharge. By the time all his medications were delivered...
Today marked Keegan's 55th round of general anesthesia. That's an average of 11 surgeries/procedures per year of life. Only slightly ridiculous at this point.It was a very long day, but the port has been fixed. It is working fine for now. Unless Keegan throws a...
I am honestly having a hard time writing this post. After today, I have no idea how Keegan has not been hit by lightening with the rarity of things that happen to him. I'm buying him a powerball ticket tomorrow. There has to be a...
Not-so-great parts of Tuesday:Keegan is still not acting like he feels his best. This could be part "hospital hysteria", but I've seen him stuck here when he really is ok. This is not it. Not quite sure why yet.The antifungal medications have some of his...
Once again, I'm a day behind in updating about this inpatient stay. That is usually a good thing when Keegan's in the hospital because it means there isn't anything too pressing to make a record of medically. Yesterday, Keegan continued to bear the brunt of...
Good evening all… This is actually Gray taking over the blog… Just for tonight… I don’t want to disappoint the Miracle of the Heart fans out there so I will try and keep it brief and very visual (I’m more of a picture guys too).Last...
I'm sorry I didn't get a post up yesterday, but things have been moving a little quickly over here. By the time Keegan was settled last night, I had such a headache. The thought of turning on the computer to post an update made me...
I guess I spoke too soon. Will I ever learn?When I went into Keegan's room to get him up yesterday , I found that he had chewed through his TPN line. Yes, chewed through it. Didn't break it all the way, but it looked like a...
I've been sitting here trying to start this post for the last 5 minutes, but I am really struggling how to explain or make sense of what's going on with Keegan. It's likely because no one really seems to know exactly what is going on...