Well, tomorrow I get to say goodbye to my gallbladder. Thank, God. I'm beyond ready to be through with this. It really is "nothing" that is going because according to the tests and doctors, my gallbladder is doing absolutely nothing but stewing. Ugh. Thankfully, I...
We've been trying to let the kids swim every weekend while Keegan's port is deaccessed. Last weekend, that meant the baby pool and sprinkler time and a visit from Oma and Pops. Ya gotta love summer!...
Last Saturday, we met Aunt Alex at the Dallas Museum of Art for the annual BooksmART festival. It was a fun day of free admission to the DMA with lots of arts, crafts, music, and book readings. My uncle, Chris, was in town and met...
I don't know how many times I can apologize for being a bad blogger. Luckily, this time it's because things have been going ok. Keegan has been outpatient for exactly one month as of today! That is a HUGE accomplishment for him! I haven't gone...
What a light you have been to our lives the last two years, sweet Audrey! We have enjoyed beyond measure watching you learn and grow into a little lady this year. You have endured many hardships this year. Yet you have shown us time and...
Our little Miss Sunshine is turning 2 on Wednesday! Last Saturday, we celebrated sweet Audrey with a "You are My Sunshine" themed swim party at my parents' house. I think everyone had a great time, especially the little Ladybug. She never has a hard time...
Keegan's port is accessed seven days a week for his daily IV medications and TPN. On Sundays, we take the needle out after his morning meds, and he gets a break until bedtime. We had a wonderful day swimming yesterday while he was deaccessed. Keegan...
Just a quick update to say Keegan is still hanging on at home and still TPN-free for the moment. His labs this week continued to show a steady decline. However, the medical team is in agreement with us that there is nothing to do now...
Saturday we were blessed with another fun day courtesy of Texas Scottish Rite Hospital, where Keegan sees his rheumatologist and developmental pediatrician. It was the hospital's annual Farm and Ranch Day! We met up with my friend and Audrey's godmother, Marci, and her son, Noah,...
Here we are breathing down the door of being home almost a week, and I have to say I'm relieved...