23 Sep On the move
He may not be "out of the woods" yet, but Keegan is out of the ICU! Will update more tomorrow. For tonight, we are asking for prayers for sleep! Sleep for Keegan and our buddy, Rylynn. Keegan hasn't slept but about 3 hours...
Author: admin
22 Sep Steady
I'm not quite ready to label a post "stable", so "steady" will work for now. His labs were up and down, again trending back to his old cytopenias. I'm not sure anyone believed that was something we could correct for good. We are just hoping...
21 Sep Decisions
Keegan is still in the ICU. He is still bleeding from the bone marrow biopsy site, but it has slowed to an ooze from a gush. And just to correct myself from the other day, he is actually bleeding from the bone. It's not marrow,...
20 Sep Four Years
It's quite surreal to sit in the cardiovascular ICU four years after our lives changed forever. I don't think I ever fooled myself into believing that life was going to be perfect after transplant, but I never in a million years have imagined where this...
19 Sep Eye of the storm
Another long day in the ICU. I can't quite get an eloquent post up tonight. Just wanted to share a few things:Bleeding seems to have stabilized without any more IV clotting factors today. His blood counts did drop to critical levels this...
18 Sep Bleeding
Keegan's bleeding has slowed down significantly this morning, after 18 hours of nurses, doctors, Gray and me all taking shifts holding pressure on the site. We ended up having to give him two different types of clotting factors to stop it. So far, we haven't...
18 Sep Back to the ICU
Keegan was transferred to the cardiovascular ICU here in Boston this afternoon. We were able to stop the bleeding from his bone marrow biopsy site last night for a little while. It started up in earnest gain around 11am, and it hasn't stopped since then....
17 Sep Biopsy and steroids
I really, really want to write a good update that explains everything that's going on. I hoped that I would have had time to do so tonight, but things have just been too hectic. I'm not sure my brain can put it all together, but...
16 Sep Tonight
I don't even know where to start this update. It will be a brief one for tonight. Keegan is not doing well. He had a very rough day of high temperatures. The IVIG we gave him last night did not stop the inflammation occurring in...
15 Sep Prayers
I know I was sleepy writing last night's post. Guess I didn't realize how badly until I read it again just now. Sheesh. Pardon my poor grammar there.Tonight, I'm just as tired, but it's going to be a long night ahead. For those reasons, I'm...