Both of our two big meetings of the week, with GI and immunology respectively, have left us as uncertain, if not more, than we were before about what the next step is with Keegan. If that's possible. We really need some time to process it...
That has been the theme of the last few days here at the Harrison house. Keegan's fever held out until early Saturday morning around 4am. This was a break from what had become his "norm" of the fever coming every 6-7 days. It "should" have...
I found some pictures from the last few months that I hadn't had the opportunity to share.A little random cuteness from the Bug and Ladybug to make you smile!This was the week before the big surgery to remove Keegan's port from the subclavian artery.Compare this...
Because I don't feel like an update, and I know some people (*AHEM!!*) are waiting ever so patiently...
Dear Family and Friends of the Harrison Family, As you are well aware, the Harrison have been enduring a tumultuous road lately. In an effort to give this extraordinary family some sort of relief, we have set up a Care Calendar for you...
Goodness, this girl! She is light years faster on this just over the last few days. She even slides out as she takes corners. Audrey may be fearless on this little wheely ladybug, but confidence is a severe issue on her own two feet. Today...
Keegan did ok through his colonoscopy and endoscopy yesterday. A lot of bleeding, much like the last scope in June, but otherwise he handled it well. As we have come to expect, they didn't visually see anything remarkable. The only thing that looked strange was...
Keegan's fever does seem to be over for this week. That doesn't mean he got a break today though. This afternoon, he had a repeat CT scan of his chest and an ultrasound of his abdomen. On first glance, there did not appear to be...
I think (knock on wood) that Keegan's fever has finally broken through this cycle. He had a fairly low-grade temp (100.9) overnight, but the last spike this morning was just shy of 104. That brought the vaso-constricting, retching, and vomiting back. Luckily, the IV Tylenol...
Keegan's fever is back for the third week in a row. I can't say we are surprised. We were also right when we predicted that the fevers would get stronger and harder on Keegan. Last night around 3am, we realized he was at 103.7. It...