I was finally uploading the last few months of photos to print today and found this little video from May from one rare day that Keegan was not in the hospital. Thought I would share, since it brought a smile to my face. My two...
Once again, I feel like I need to apologize for not updating this blog often enough or well enough. At one time, this blog was therapeutic and even a cathartic outlet for me, as well as a way to keep our family, friends, and Keegan's...
Today, we ventured downtown to the hospital for a transplant nursing visit to keep eyes on the bruised/bleeding port, a PICC line dressing change, and a play therapy appointment. The port looks about the same, perhaps somewhat better, than yesterday. It's the strangest thing, and...
Ended up in the ER this evening with Keegan again. His port (that is not being used) started to turn purple and swell under the skin today. Literally looks like it is about to pop straight out of his skin. Quite worried about it when...
I have too little brain power left to post much of an update. Just wanted to say that Keegan managed to stay home and out of the hospital through this recent fever. His temperature rose to 102.9 overnight and stayed pretty high until mid-afternoon. Through...
Keegan's fever. It's back. Ugh. Last night for several hours, Keegan would momentarily start crying and moaning in his sleep, intermittently saying "help, Daddy!" I think it just about completely broke Gray's heart. It was hard to turn off my mama instinct that something was...
I really should stop promising a time or date for a post. Sorry about that. After a whirlwind day yesterday and not getting up from anesthesia until almost 5pm, Keegan was discharged last night - in rush hour traffic, of course. But the important thing...
Keegan just came back to his room after having a PICC line placed in his arm. This was his 40th round of general anesthesia. He's not even 4 years old. This time, he had a little oxygen dependency for about an hour afterward, but it...
This inpatient stay, that is. Keegan's port is still leaking. It's rather disgusting actually. We rested it Monday. Tuesday, surgery ran a dye study that showed the port is in tact (surprise), and they don't know what else to do. We had to access the...