I’ve tried to start this post about twenty times so far and am still struggling to find the words. They’re difficult to find when I try to explain it in person, yet alone in writing. Hopefully just putting it in writing will help me process...
Keegan was admitted to the hospital again last night. After the reaccess of his port at midnight on Wednesday, it continued to bleed and have discharge of some kind into the dressing. He woke up Sunday morning scratching all around the dressing and at the...
I know I promised to post again with the rest of the news about Keegan's medical issues. I didn't get to it last night, and since I don't have the energy tonight, I just wanted to post an apology/excuse. Both kiddos have been having sleep...
The word that rolls most frequently off my tongue and through my mind right now is IF. So, I'm not sure entitling this post "what we know" is a good idea because frankly, we don't know a lot of things, or anything for that matter,...
We are still at home. A weekend at home together. It was nice to be able to say that again. Keegan has been home for four whole days, and we're hoping to stay here for a little bit at least. He has his good moments...
It was a very long day with a lot of information to process. The team kinda wanted to keep him another day, but we decided to come home tonight. Even though it was another rush-hour discharge that brought us home right before bedtime.Keegan's heart function...
We finally got an IV in Keegan's left hand after a good dose of valium. Labs, 2 x-rays, and an initial surgical consult later, he was finally asleep for the night around midnight. At one point, the IV team looked up as he fought them...
I couldn't make this you-know-what up if I tried! A short recap of the last four days:FRIDAY: In the morning, I went to the dermatologist due to what appeared to be a breakout of hives all over my torso. To be sure it wasn't infectious...
Keegan is not necessarily doing any better. A few more smiles today and much less bleeding. But we did decide to bring him home this afternoon. We know that giving him blood would make him feel better, but his counts have been stable the last...
Another quick update again tonight. I am going home tonight to get ready for a presentation I'm giving to the Executive Committee of the Solid Organ Transplant Center here at Children's tomorrow. If I get approval from the Center's leadership, the program will be a...