Keegan has been in the OR since 8:30am. All surgeons should be there and starting diagnostics & planning by now. We will get updates from OR as they go along. First update should be within an hour once they decide with what method they...
You may have seen our updates to Twitter or Facebook that Keegan's surgery will be postponed until tomorrow morning at 8am. His transplant surgeon, Dr. Kristine Guleserian, will be coordinating and leading the surgery to remove his port. She has been planning, researching, and assembling...
Keegan will be going into emergency surgery this evening. His CT scan showed that the catheter of his port has eroded from the vein it should be in into the subclavian artery. We don't exactly know how this happened. All we know is that it...
I had a gut feeling that we were gearing up for a long fight. I guess I was hoping it wouldn't start until next week! Keegan woke up with 102.9 degree fever yet again this morning. This is the fourth episode of fever this month,...
The best word I can find to describe things right now. Difficult. Difficult to process. Difficult to understand. Difficult to explain. Difficult to accept.Without getting into too much detail right this moment, a lot has changed in our picture in the last few days. Keegan's...
Keegan has rewritten this legendary poem...
It appears we may be destined to spend every weekend in May in the hospital with Keegan. This will be our third weekend, only one left to go. Bleh.Keegan woke up around 3am. He wasn't fussy or upset, just restless and awake. I left him...
A jumble of letters today.Keegan successfully had a PICC line placed in his right arm on Tuesday. So far, it is working and still in place, but it is also bleeding into the line when not in use. It is not bleeding into the dressing...
Keegan will have a PICC line placed tomorrow morning. This is a more temporary central line that will come out Keegan's arm. It is placed via the interventional radiology team, not surgery. It will require anesthesia however (I believe this will be the 35th time...
I'm so very creative with my post titles, huh?Keegan's had an ok day. He struggled with his fever all night, but regularly scheduled tylenol has kept it down today. We are out of the first 24-hour period with no growth on the blood cultures. We...