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Author: admin

28 Feb

Posted at 04:46h in favorites by
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If only I had a dime for every time I heard, "I don't know how you do it", "I could never do it", or "how do you cope with it?", I would be less than a millionaire, but I'd darn sure be richer than I...

25 Feb

Posted at 04:27h in Uncategorized by
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I know it's not very interesting, but I feel like that's what the last week has been about around here.  Several people have asked how Keegan is, how "we" are.We're surviving.  Just doing the day to day and trying to be ok with it.  The...

16 Feb

Posted at 18:52h in favorites by
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Children's Medical Center sends out a monthly e-newsletter called "Children's Connect" with relevant stories concerning children's medical issues and patient stories.  This month's issue had two great stories about organ and tissue donation, including a lovely article about Keegan and Johnston.  Heather told the boys'...

12 Feb

Posted at 03:57h in chd by
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This is the last post I have in me for Congenital Heart Defects Awareness Week.  This week is hard on me for a multitude of reasons. I have to think back and remember the worst days of Keegan's life thus far.  I have to think of...

11 Feb

Posted at 04:10h in chd by
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If you have ever been in an emergency room or hospital or even watched too much ER or Grey's Anatomy, you have probably seen a pulse oximeter.  For adults, a little clamp that looks like aligator jaws sits on one of your fingers emitting a...

10 Feb

Posted at 04:11h in chd by
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By now, you know Keegan's.  If not, you can click the "about" tab above.  So today, I want to offer all of you the opportunity to share your story.  Are you a heart patient/mom/dad/sibling/grandparent/anut/uncle/etc?  Are you the parent of a sweet CHD angel?  Even a...