Not a lot of new information to report today. We are still working on advancing Keegan's tube feeds. By tomorrow morning, he should be to full volume (amount of formula per day), and then we will have to start increasing the concentration. By Monday afternoon,...
Not much happened today. Hopefully, Keegan will get most of his cardiac testing out of the way tomorrow. We have a plan set in place for advancement of his feeds and getting him off of TPN. Today was the first day we felt everyone was...
That's what it was overall. Labs are looking better. Keegan is responding to the renal medications. We were able to get him to walk some and even play a bit in the cardiology playroom. He is still very weak and tired, but he seemed to...
Well, turns out Tuesdays aren't much better than Mondays sometimes, but it's over now. Not everything went according to plan today. Although, some very big progress was certainly made.Keegan successfully went into surgery this afternoon. They removed his dialysis catheter and replaced his central broviac...
Important things first...
Gray's parents asked that we post the following. We are very appreciative of their effort to coordinate a care calendar for us. Thank you in advance.*****************************************************************Thank you for supporting Keegan!!!We are organizing this effort to free Maddie and Gray up so that they can focus...
Keegan looks much better today...
I have more photos to share today than info. Keegan has been a bit more lethargic today, but we kinda expected that. He became quite fluid overloaded in the last day and a half. Right after I posted last night's update, he had to go...
Well, today turned out to be a big day for Keegan. We turned off his oxygen last night before bed, and although his oxygen saturations are not all the way back to normal, he has maintained enough that we haven't yet turned it back on. ...
Things got pretty busy around here this morning, being the first day on a new floor. I hate going to a floor where no one knows us. Trying to explain Keegan's complex medical history to a million new people is such a chore. Needless to...