I know I am extremely behind in updating about this kiddo. Oh, he just makes my head swim sometimes. Or all the time. He is stable and home for now, which is the most important thing. We are hoping that Keegan's labs will stabilize and/or...
My life came somewhat full circle today. My baby girl started ballet. Audrey is attending a week-long workshop at Texas Ballet Theater. My parents spent hundreds of hours over fifteen years sitting outside a ballet studio, and now, it's my turn. I can't fully describe...
Yes, I have a zillion things I need to write and update about. It has been two weeks of literally chasing our tails with Keegan's labs, among a host of other issues he is throwing our way. I feel like a chicken with my head...
As tends to happen, I spoke too soon. Keegan's ANC had fallen again when we drew labs yesterday, so we started round 2 of GCSF. The team wants to give him one more week to see if he will recover, but it seems fairly obvious...
Well, let's hope the second time's a charm!Week 1 of training starts next week. Yikes!You may remember that last year I tore my Achilles and was unable to run. We still managed to be one of the top 25 fundraising teams for Texas Scottish Rite...
These pictures are slightly overdue with our subsequent inpatient stay, but they are worth it! We celebrated Audrey's third birthday at the beginning of June in true princess style, per her request. She specifically wanted a "Princess and Cinderella party with a bounce house and...
Keegan celebrated our country's birthday with a pretty big milestone. His first swim in over a year!Hat? Check. Goggles? Check. Rash guard? Check.Floaties? Check. Flippers? Check.Let's get this party started!Our little fishSign of a good July 4th partyYep. Think he's got it down.And what made...
Just a quick note to say we are all ok and still at home. Keegan's blood culture from the ER last Saturday (after the second chewing incident) grew back a type of strep that was rare enough that our transplant team hadn't ever heard of...
My brain is fried. Absolutely, positively fried. Here's why, and I think you'll understand. I'm going to do my best to make this make sense. Please forgive me if it doesn't.FRIDAY:We spent all day preparing for discharge. By the time all his medications were delivered...
Today marked Keegan's 55th round of general anesthesia. That's an average of 11 surgeries/procedures per year of life. Only slightly ridiculous at this point.It was a very long day, but the port has been fixed. It is working fine for now. Unless Keegan throws a...