05 Mar Safe & Sound
We all made it to Boston safe and sound on one of the coldest days of the year. I got here before the boys did and started the long process of getting the team here updated. Gray and Keegan made it to the...
Author: admin
03 Mar Beantown
It seems if you hand people all the work they should have done on a silver platter, all cut up in easy bite-size pieces, miracles do happen. One of the administrative directors of the hospital who works with me on a hospital committee came...
03 Mar Update
Wow, talk about crazy. I apologize in advance for not updating yesterday, but when the "stuff" hits the fan, it's messy and not easy to put into words...
28 Feb Update
Keegan's being a trooper, as always. We've had some interesting developments over the last day or so. Keegan had a CT scan of his abdomen and pelvis yesterday that showed his spleen is very enlarged and some other general problems going on. ...
26 Feb More Waiting..Or Enough is Enough!!
We had one good day at home on Tuesday. Yesterday, Keegan didn't look right (swollen, red), and he seemed pretty lethargic and uncomfortable. He didn't tolerate his second feed of the day at all. Around 1am, he hit a pain episode hard...
24 Feb Home Again
We made it home early this evening. I can only remember once that we weren't discharged in rush hour traffic. We'll be so happy when Keegan can be admitted at the Legacy campus of Children's - a short tenth of a mile or...
23 Feb Waiting
Keegan didn't have a great night. Lots of air and excess coming from his tube, but he did NOT throw up this morning. He acted like he was going to but managed to keep it in. The resident was in the room...
23 Feb Update
Sorry for the delay in posting. Things can get crazy quickly at the hospital. Keegan's doing well - same ol', same ol'. We moved down to the GI floor on Thursday evening, much to Keegan's chagrin. He likes all the nurses...
19 Feb Update
Keegan's doing ok tonight after an iffy day. He didn't sleep great last night with lots of air and some distension of his tummy, but since he had no feeds after 5pm, he did not throw up this morning. (Yeah!) The good...
18 Feb Back at Children’s – PART 7!!
And Keegan's back at Children's yet again. He made it 6 days this time. It's a GI admittance, but we are luckily on the cardiac floor. Our primary GI doctor has been working on getting us admitted since we called him this...