26 Oct Update
Well, Saturday went well until around 6pm. Keegan seemed to be doing ok on 50ml/hour of the 20kcal for most of the day. Around 3pm, we increased his calories to 24kcal, and after about 3 hours, he started having diarrhea again. So...
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24 Oct Update
Keegan is still doing ok with his feeds. Last night right after Gray left to go home, Keegan started to choke and cough, which pushed his ng tube out a bit. He was pretty upset and ended up pulling it all the way...
24 Oct Update
The plan changed yesterday after we posted. Keegan's weight was down to 15.3 pounds, and he had been 24 hours without a bowel movement by 4pm yesterday. So with the picc line out of place, Dr. Brown advised to go ahead with starting...
22 Oct Update
Keegan did ok yesterday. He was in a decent mood much of the day despite a few problems. His picc line has migrated out of the vein it should be in. It's not a huge problem, but it means we can't increase...
20 Oct Update
I'm so sorry we didn't get a post up yesterday. We couldn't get the journal to work. We even took pictures that we tried to post, but even that wasn't working. Keegan's room is on the back side of the hospital, so...
18 Oct Update
Good Afternoon Everyone…I just wanted to leave a quick update for everyone checking in on Keegan. Maddie stayed with him last night. I think overall we had a pretty good night. Maddie reported that he was up and down with some stomach cramping and scratching...
17 Oct Update
Perhaps we posted too soon yesterday. Keegan has had a pretty awful time since yesterday afternoon. From about 3pm on, he was either asleep or screaming/thrashing in pain. He would not let anyone, even me, touch him. His stomach was cramping...
16 Oct Update
Keegan slept better last night, which is a big relief. They stopped his IV fluids yesterday in the early evening because he drank a bit of Pedialyte with no vomitting. However, he wouldn't drink the formula, and he is now back to refusing...
15 Oct Update
Keegan’s hanging in there right now, but he still feels pretty cruddy. He was admitted yesterday at Children’s around 3pm and started IV fluids almost immediately. He has been on complete “gut rest”, meaning nothing by mouth, not even water. He slept...
14 Oct Back at Children’s
Keegan will be admitted at Children's this afternoon for at least 24-hour observation. His biopsies were normal, and he had the GI sonogram/xray series this morning. He desperately needs fluids and gut rest. We will update with more information and details once...