Hanging on to hope.That's what we were doing on day 7.It's amazing how strong and fleeting that emotion can be in the same instant.Luckily for us, our hope came that night in the form of an angel named Johnston.We were one of the lucky 40,000...
Our worst fears became reality on day 6 of Keegan's life. An echo done prior to an attempted wean of ECMO support showed that a hematoma on the ventrical septal wall of his heart had bled out. The only way Keegan could survive was if...
This is what we saw on the morning of day 5. And somehow things were ok for just one day...
On day 5, we finally started to see Keegan move his little hands and feet and were waiting anxiously for his eyes to open. Our biggest concerns were his kidneys, his lungs, and his brain. Keegan was officially listed as a status 1A on the...
Keegan on ECMO at three days oldThis picture doesn't require much annotation. Day three of Keegan's life was spent processing what new world we found ourselves slogging through. None of us remember much other than just the intense struggle just to keep breathing. We still...
Today is day 2 of National Congenital Heart Disease Awareness Week. Day 2 of Keegan's life was September 13, 2007. Over 12 hours of that day for Keegan were spent inside the cardiac operating room trying to fix a heart smaller than a walnut. For...
Today is the beginning of National Congenital Heart Defect Awareness Week (February 7-14). As you know, Keegan was born with the critical congenital heart defect (CCHD) of Tetralogy of Fallot with pulmonary atresia. One in every 100 babies born in America each year will be...
My dad shared this video with me this morning from NBC's Rock Center with Brian Williams, and I was so amped about it that I had to immediately post it here. The technology is amazing, no doubt, but what really got me excited was the...
Mission Accomplished for our HERO!Gray and I had a great weekend celebrating our little hero, Keegan. Gray can now officially say he is a half-marathoner. He ran well, and I was very happy to be able to run with him, even bringing him in under...
Really it's been a day of days every day around here the last few days. Whew.Last Friday, Keegan's labs showed he might have been reacting to something. Most notably, his white count was up for him (still low but higher than his norm), and his...