Keegan's ferritin climbed to 16,000 today, and the remainder of his labs continue to trend the wrong direction (all blood counts have dropped significantly from last week; liver enzymes up; coags up, etc). An expected course for a flare. I have to laugh when I...
Keegan loves movies. He loves music. He loves to dance. Ergo, he loves Rio.This was taken last Monday before we left for Cincinnati as we waited on his monthly pentamadine treatment. Better times. It helps to remember them during the not-so-great times. And this is...
I know I promised a more in-depth recounting of what we learned in Cincinnati tonight, but I don't have it in me. Keegan's ferritin jumped to 6,000 today, so we officially have another relapse on our hands. He seems stable outwardly with no other symptoms...
Yes, we are back home from Cincinnati. Arrived safe and sound on Friday afternoon. Unfortunately, we are also back in the hospital here in Dallas. Keegan was admitted to Children's downtown today after he started spiking fevers again. He doesn't show any signs of having...
I think we are ready to leave for Cincinnati tomorrow. I hope we are ready.I keep telling myself that we will be ok, no matter what happens, but I'm not convinced of that yet.But here we go anyway. Lord, be with us....
Kidneys: Keegan had a decent nephrology appointment last week. His kidney function labs and urinalysis have stayed stable, but his blood pressure has not. You may not be aware, but more often than not, your kidneys are the culprits with high blood pressure. Since we...
Since my avoidance issues have prevented an update on Keegan's health for so long, we will once again have to resort to our friends, the bullet points.Keegan's last set of labs were very stable, and his HLH markers were actually a touch lower too. We...
Once a week, we take the needle out of Keegan's port to put a new one in. While he is "accessed" all week, he can't get the dressing on top of the needle wet. We have to cover it with plastic wrap and oodles of...
Not really too excited about it. I'm absolutely ready to give 2011 the boot.2012? I'm not really sure what to think of you yet.There are so many things I need to explain. So many things I need to process. So many things I need to...
My sister, Alex, is off of work until next week. So we decided to try a fun outing with the kiddos yesterday and head to the children's aquarium at Fair Park. It's small, not too much to see and not too crowded compared to the...
