14 May Three days
A lot can happen in three days. Keegan is back in the hospital for one thing. Dang it.The last two days he has been rather lethargic. He was refusing to get out of bed in the mornings, spending most of the morning cuddled in the...
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14 May Famous
How nice to open the most recent fundraising letter from Children's and see Keegan's face smiling out at us! It was another well-written version of Keegan and Johnston's story.You can read it by clicking HERE.Ironically, we also got the paper version of this newsletter in...
12 May Home again, home again
Just a quick post tonight to say Keegan was discharged late Monday afternoon from the hospital. (Yes, I'm well aware that today is Wednesday. Thank you.) The bleeding from his port and into the line has slowed but not stopped. Keegan's blood counts came up...
09 May Maybe tomorrow
Maybe tomorrow Keegan will get to go home. We are still having some strange issues and continued bleeding from his port but not nearly as bad as before. We have polled everyone from surgery to oncology looking for ideas as to what could possibly be...
08 May Still Here
Keegan is still inpatient. We were able to get his port working last night after busting out a clot that was in there, likely from all the bleeding. That allowed us to use it to run his TPN overnight, but it didn't address the bleeding...
07 May Port
So, you may have noticed via our twitter feed or FB updates that Keegan has been inpatient since last night because of an issue with his port. I will try to make a very long story short. We've been having some issues on and off...
03 May Still waiting
Just a quick update to say that we are still waiting on Keegan's biopsy results. Pathology hadn't released anything by 5pm this afternoon. Frustrating to say the least. Hopefully, they will be ready tomorrow. Not that I'm getting my hopes up for results that will...
30 Apr Home & Waiting
Keegan came home late last night. He had some significant bleeding and pain from the biopsies, and he didn't sleep too well. Today showed an improvement in his energy levels, if nothing else. He had labs drawn this afternoon, but we don't have results from...
28 Apr Here we go
Keegan was admitted to the hospital just after lunctime today to prepare him for his upper endoscopy and colonoscopy tomorrow. In an attempt to provide a better picture of his colon, he is being given a solution through his g-tube to "clean him out." This...
26 Apr Easter Fun
A week ago, the "Easter Bunny" (aka Aunt Alex, who graciously borrowed a costume and played along) came to dye Easter eggs with Keegan. Very excited to make the dye...