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Well, I intended to write a nice Mother's Day update.  We did have a nice weekend celebrating my mom's birthday and Mother's Day with family, and I will be sure to update soon with pictures from those get-togethers.I quickly wanted to put an update about...

One year ago today we drove up to our house in a rented minivan after a three-day road trip home from Boston, signifying the end to over 8 months inpatient.  Since then, Keegan has spent only three days in the hospital.  I was reminded tonight...

It hasn't been a particularly exciting week per se around here, but I wanted to update about a few things.First, thank you so much for the prayers for our last sonogram that was Monday.  She looks just perfect still.  All organs seem to be in...

Keegan went to his "girlfriend", Lainey's, 2nd birthday party last weekend.  She had a bounce house party, and all the kids had the best time!  I was hoping either the bounce house or Lainey's new little trampoline would inspire some new jumping ability in Keegan,...

Daddy and Keegan will break all the rules and have LOTS of fun doing it, evidently! This past week, I was privileged to spend three and a half days at a conference and intensive training seminar held by the Institute for Family-Centered Care as a family...

Ok, so GI update is just an understatement at this point!  Something clicked in this child's head on Sunday afternoon, and he decided eating wasn't all that bad.  The same child who had never fully finished even a piece of crust of pizza (he would...

It's Easter weekend, and we have officially declared the end of winter "lockdown"!  Keegan had a very full, very fun weekend.  Can you tell he's one of the happiest (and most blessed) 2-year-old's you've ever met? Saturday we had an egg hunt at Mamie &...