31 Jul Why We Are Here
After writing the below post last night, Gray commented that it was going to "scare a lot of people", and it probably did. I know it's not the first post to do so. I thought a lot last night about why we have this journal...
Blog
31 Jul Update
Well, Keegan's still home and holding his own. I'd hate to think where he'd be right now without the hydration and calories he's getting from his tube...
24 Jul Quick Update & Prayers
Just a quick update. I'm not sure how many of y'all are following our mini-updates on Twitter, and even if you do, the last few were kinda vague. Keegan's GI issues have been pretty bad this week. We're trying to stay positive...
22 Jul Update
We've had a busy start to the week. I probably don't have much naptime left to post this, but I'll try anyway. Monday was transplant clinic. Keegan had two blood draws, a chest x-ray, an echo, an EKG, a breathing treatment, and...
20 Jul Heart Moms
Just wanted to let you know that new pictures are up on Keegan's photo site. Check out all the fun he's been having this month at home, and be sure to leave him a message of encouragement! We have cardiology clinic all day tomorrow and...
17 Jul Update
Really sorry about the delay in posts. We're still at home and still hanging in there. Unfortunately, the same cannot be said for our internet connection. Every time we think it's working for good, we say "good, we can post an update...
02 Jul Update
So, this week's been pretty busy. We'll start at the beginning, since that's always a great place to start. Right? Lots of info, so stay with me!MONDAY - Early Childhood Intervention planning meeting. This went well, if you ignored Keegan's insistent,...
24 Jun New Pics
See, we get to title this post "New Pics" because there's not a lot of news on the medical front. Insurance, medicare, and nitty-gritty who-pays-for-what/why-are-WE-paying for this matters are another story, but as far as Keegan's concerned, no news is good news. We...
17 Jun Little Update
Thank you for keeping Keegan in your prayers as we reran his labs yesterday. His immunosuppressant levels (amount of the drug in his system) was just a hair low, so we made no changes and will recheck on the 30th. Keegan's cardiologists in...
11 Jun Update
Well, once again I apologize for the delay in updates, but we've had such small tidbits of info that I tend to wait until we have enough info for a true update. Lately, I've been praying so hard and thinking so much of our...