Yesterday morning, I took Keegan in bright and early for weight, labs, and his pentamadine treatment. His weight was the same, but it was on a different scale. We're going to see what he weighs back on the cardiology scale on Tuesday. ...
Keegan had a much better report at clinic yesterday morning. His liver function was improving, his electrolyte levels were stable, his red and white counts looked great (for him), and one specific type of white cell that he has never, I repeat never, had...
Keegan is still thankfully outpatient. The labs drawn Friday afternoon that were back by the evening didn't look much different, but as our doctors said, it is difficult to admit him based solely on labs. Thank God for that! I know that...
Keegan definitely needs your prayers now. We did end up going in for a lab draw this morning. He had handled his overnight feeds fine and woke up in a good mood. He handled his lab draw pretty well, and we noticed...
Ok, so Keegan technically made it 27 days without vomiting. We had a really great morning, exploring Boston Common, the Public Garden, and Newbury street (that's LOTS of walking, y'all) before the rain set in this afternoon. We made it back to the...
Exactly 20 days at Children's Hospital Boston. That's all it took to get Keegan on full feeds and no TPN, mainly a simple switch in formula and an oral antibiotic. And we couldn't be happier!We arrived at our apartment just before 5pm, and...
I'm going to make the update about Keegan short today because there is something important to include at the end. First of all, it's apparent we don't have many cool friends because only a handful of y'all have posted comments to his pics and...
Just a quick update. Keegan's been handling the feeds SO well. We are just amazed. I told our admitting doctor that I was almost embarrassed at how well it went, considering we'd been so insistent on the fact that he could never...
Ok, so after a few questions from some of Keegan's devoted fans, I realized that I needed to make some clarifications to the post about the plan. The question I was asked most was, "obviously, we've been trying to increase Keegan's feeds and get...
Well, I think we actually have a plan for Keegan's teatment for the first time in the last 143 days we've been inpatient since September! Yes, you read that right. We had a very productive meeting with Keegan's team this afternoon, and while...
