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Blog

16 Feb

Posted at 05:28h in Uncategorized by
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We hope everyone had a happy Valentine's Day yesterday. We enjoyed being home, and Gray and I even got to sneak away for two hours to go see a movie yesterday afternoon thanks to Big Daddy and Aunt Alex. Thanks so much for...

12 Feb

Posted at 22:00h in Uncategorized by
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Just a quick post to let y'all know Keegan was discharged late last night. He's doing ok so far. I will update again later with more info. We are still working on getting a second opinion, so please continue to pray that...

11 Feb

Posted at 04:07h in Uncategorized by
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Brief update tonight. I've been trying to finish up Keegan's medical summary to be able to provide to referring hospitals. It's taking quite a bit more time than I thought it would. For the record, I was wrong about the number of...

10 Feb

Posted at 00:28h in Uncategorized by
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How many times lately have I started a blog entry with the word "unfortunately"? I don't know, but let's add another one. Unfortunately, we're not going to get an answer for Keegan from his liver biopsy. I'm so angry with the pathology...

06 Feb

Posted at 19:09h in Uncategorized by
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We are STILL waiting on the results from Keegan's liver biopsy. Yesterday, they said it would be more like next Monday before they have any more information. We asked our transplant surgeon to go throw some weight around. She said she would...

05 Feb

Posted at 05:31h in Uncategorized by
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I can't really entitle this entry "update", since I don't really have much to update about tonight. We're STILL waiting on Keegan's liver biopsy results. We'll keep praying for them for tomorrow, I suppose. We've advanced his feeds to 15ml/hr this afternoon,...

03 Feb

Posted at 03:04h in Uncategorized by
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Unfortunately, I don't have the update I wanted to have for tonight. We're still waiting on results from Keegan's liver biopsy. Keegan is doing alright. He had a pretty rough night Saturday with lots of air in his bowels as they "woke...

30 Jan

Posted at 04:22h in Uncategorized by
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Keegan has finally turned a corner early this evening. He had 5 morphine boluses and 4 loratab doses, but after his thrid nap today, he woke up feeling so much better. His incision seems to have stopped bleeding, and we clamped his g-tube...

28 Jan

Posted at 16:37h in Uncategorized by
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UPDATE - 5:20pm: Had to give more pain medicine. We asked to avoid morphine again if at all possible, so we tried something a little less potent. Keegan developed a high tolerance for many pain meds in his first month, so we try...

27 Jan

Posted at 19:59h in Uncategorized by
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UPDATE 9:45pm - Still no time for Keegan's surgery. While Keegan is our surgeon's only scheduled case tomorrow, he is on call for emergencies. We're hoping it will be early in the morning, but Keegan could be bumped by an emergency. We'll...