I've definitely jinxed it. Our new "outta here" date is Tuesday. We've had some delays getting the home TPN/lipids pumps delivered and getting all his meds ordered and delivered, among other general issues. As we learned at Thanksgiving, getting anything done during...
I hate to even put this in writing because I know I'm jinxing it, but the transplant team said this morning we're looking at Monday for going to the "h-word"!!! We shall see, but it's encouraging nonetheless. Not a lot of changes other than that....
Another pretty good day for Keegan, and we are hoping that we're not imagining that light at the end of the tunnel! The transplant team is at least confident enough to start getting his home healthcare lined up. Then we just have to pull the...
Not much new to report today. We finally got access to the picture site this morning, although I’m pretty sure it’s a fluke. I was told at a hospital committee meeting that they are working on getting the networks ironed out, but it...
I apologize for the lack of posts. Once again, we are victims of the hospital wireless networks. I can now access this website. I still can't get on his photo site, and boy oh boy, do we have some pictures for you! We'll figure out...
Good and bad news today. Good first ...
Yesterday the blood cultures from Keegan's port site grew a staph bacteria. We've continued him on the high-powered antibiotic until we determine the sensitivity of the bacteria to a particular drug. The staph is a common one that most of us carry on our skin...
Keegan's white count got even lower yesterday, specifically his neutrophil (baby white cells) was extremely low. Normal ANC (absolute neutrophil count) is anything over 1500 units per deciliter of blood. Severe neutropenia is considered a count of under 500. Keegan's was 70....
Sorry for the lapse in posting. The hospital networks were acting up, and we just had a nice weekend focusing on family. Keegan's condition is pretty much the same. The pancreatic enzymes haven't started working quite yet, but it can take up to a week...
Keegan started his enzymes last night. It will take 4 to 7 days for them to begin to work. We've taken him off the antispasmodic to see exactly how he does with the enzymes. The biopsies from his recent scopes were normal,...
