05 Nov Update
Today was more of elimination of possibilities again than answers. Keegan was again in a pretty good mood today with lots of smiles and monkey faces. His white blood cell count was up a bit, and he is up to 15 pounds again....
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04 Nov Update
Yesterday was a day of rest and no poking for Keegan. The blood and TPN helped restore his energy, and he was in a very good mood yesterday and today. Late last night, we started giving him an extremely elemental nutritional mix called...
01 Nov Update
Well, just as we feared, the scopes came back as pretty normal. Biopsies and cultures were sent once again, and they will take until probably Monday or Tuesday for results. We haven't had a visit from GI to follow-up. Dr. Barth will...
01 Nov Update
Sorry for not posting yesterday. Halloween was a busy day around here. Keegan's blood counts were extremely low again yesterday, and he was very lethargic. He was asleep most of the day, even most of the time we were at the Halloween...
31 Oct Evening Update
Keegan did fine through the surgery and CT. The surgeons were able to get the port in and preserve his jugular veins for future cardiac purposes. The port is working fine and is now being used to give him IV fluids. We'll...
30 Oct Update
It's now almost 1pm, and Keegan's been in surgery for less than 30 minutes. He was not taken down at 7:30 as planned, and his IV from yesterday blew sometime between 5:30 and 6:30am while he was sleeping. They stopped pedialyte down his...
30 Oct Central Line tomorrow
Just a quick evening update. Things were tense again today, as it took until after 2pm to get Keegan to radiology for the MRV and get an IV started. However, once he was sedated, the anesthesiologist was able to quickly get an IV...
29 Oct Update
Dr. Brown came by late last night and recommended a good plan of action. The first and most important thing is to get a reliable access point on Keegan for fluids, nutrition, and IV drugs. We've tried both hands and feet in the...
29 Oct Update…NOT from home
Submitted by Gray on Tue, 10/28/2008 - 8:08pm.Last night, Keegan spiked a fever of over 101 right after I posted, right as Gray was loading the car up with most of our stuff in preparation to go home today. When a transplant spikes a...
27 Oct Home tomorrow?
After this weekend's failed trial of increasing calories, Dr. Brown said we'll need to make the increase at a much slower pace, like over weeks instead of days. That makes it unreasonable to keep Keegan in the hospital to watch him. We started...