Here we are again in National Congenital Heart Defects Awareness Week. I have no great posts in me for this year, but I did put some thoughts together recently in a guest post for DallasMomsBlog. You can find it by clicking HERE. Should you be...
It's finally the last day of CHD Awareness week 2013. You know how the last day of Keegan's first week ended. With a miracle...
Hanging on to hope.That's what we were doing on day 7.It's amazing how strong and fleeting that emotion can be in the same instant.Luckily for us, our hope came that night in the form of an angel named Johnston.We were one of the lucky 40,000...
Our worst fears became reality on day 6 of Keegan's life. An echo done prior to an attempted wean of ECMO support showed that a hematoma on the ventrical septal wall of his heart had bled out. The only way Keegan could survive was if...
This is what we saw on the morning of day 5. And somehow things were ok for just one day...
On day 5, we finally started to see Keegan move his little hands and feet and were waiting anxiously for his eyes to open. Our biggest concerns were his kidneys, his lungs, and his brain. Keegan was officially listed as a status 1A on the...
Keegan on ECMO at three days oldThis picture doesn't require much annotation. Day three of Keegan's life was spent processing what new world we found ourselves slogging through. None of us remember much other than just the intense struggle just to keep breathing. We still...
Today is day 2 of National Congenital Heart Disease Awareness Week. Day 2 of Keegan's life was September 13, 2007. Over 12 hours of that day for Keegan were spent inside the cardiac operating room trying to fix a heart smaller than a walnut. For...
Today is the beginning of National Congenital Heart Defect Awareness Week (February 7-14). As you know, Keegan was born with the critical congenital heart defect (CCHD) of Tetralogy of Fallot with pulmonary atresia. One in every 100 babies born in America each year will be...
This is the last post I have in me for Congenital Heart Defects Awareness Week. This week is hard on me for a multitude of reasons. I have to think back and remember the worst days of Keegan's life thus far. I have to think of...