If you have ever been in an emergency room or hospital or even watched too much ER or Grey's Anatomy, you have probably seen a pulse oximeter. For adults, a little clamp that looks like aligator jaws sits on one of your fingers emitting a...
By now, you know Keegan's. If not, you can click the "about" tab above. So today, I want to offer all of you the opportunity to share your story. Are you a heart patient/mom/dad/sibling/grandparent/anut/uncle/etc? Are you the parent of a sweet CHD angel? Even a...
Saved my son's life.We were lucky...
...or maybe a more appropriate title would be Musings on Why I Had a Breakdown in the Target Parking Lot. Not sure which has a better ring to it.I should be sleeping right now. That is the truth. As any mom of any child, healthy...
Every time I have to attend the funeral of another beautiful child from our transplant family, I not only grieve for the family and their loss, but I grieve for Keegan. A small part of me wishes and hopes that in some way it will...
At the end of the last post, I commented about Olympic gold-medalist Shaun White, who is a CHD (congenital heart disease) survivor. I realized that I never posted last week during national Congenital Heart Disease Awareness week. My friend Andrea (mom to Summer, lymphoma survivor...
Two years ago today, we were preparing to transport our one-week old son on ECMO to the heart catheterization labs to determine if his little lungs were capable of supporting a new heart. Today was the day we placed Keegan’s life in the hands of...
Just wanted to let you know that new pictures are up on Keegan's photo site. Check out all the fun he's been having this month at home, and be sure to leave him a message of encouragement! We have cardiology clinic all day tomorrow and...
Well, here we are – one whole year post-transplant and officially out of the most critical period. The mom of one of our ICU friends, Karis, has been documenting her birth/heart story on her blog the last few days, and it inspired me to write...