Last week, Ron Suskind published an article entitled "Reaching My Autistic Son Through Disney" in the New York Times ahead of the release of his new book, Life Animated. I am anxiously awaiting my chance to read it and have read his NYT article several...
Five years ago today, Keegan received a miracle. An angel heart that saved his life. In fact at this moment five years ago, the surgery itself was just getting underway, and we had no idea if he would come back to us out of the...
It is the Lord Who goes before you;He will march before you; He will not fail you or let you go or forsake you;[let there be no cowardice or flinching, but] fear not,neither become broken[in spirit - depressed, dismayed, and unnerved with alarm.]-Deuteronomy 31:8 AMPI...
Today I did something I haven't done in probably three and a half years.I ran.Literally had to brush dust off of a dri-fit shirt and laced up some running shoes that should have been trashed a long, long time ago. I made it 28 minutes...
Honestly, I should give up making promises about when I will update. It really is near the top of my very long, ever growing list of self-improvements. Seeing as I'm not getting very far on that front, you'll have to forgive me once again. I...
I suppose it's time I wrote about our trip to Cincinnati Children's Hospital since we got home almost a month ago! I have put it off for awhile because (1) things have been a bit crazy since then and (2) we didn't learn much that...
Since my avoidance issues have prevented an update on Keegan's health for so long, we will once again have to resort to our friends, the bullet points.Keegan's last set of labs were very stable, and his HLH markers were actually a touch lower too. We...
He has autism.Just one more diagnosis. A pretty big one.But it is not him. He is still Keegan, our amazing, strong, courageous, resilient little Bug.And we love him.Do you?...
Keegan is still in the ICU. He is still bleeding from the bone marrow biopsy site, but it has slowed to an ooze from a gush. And just to correct myself from the other day, he is actually bleeding from the bone. It's not marrow,...
I’ve tried to start this post about twenty times so far and am still struggling to find the words. They’re difficult to find when I try to explain it in person, yet alone in writing. Hopefully just putting it in writing will help me process...