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You may have seen my Twitter/FB post earlier today that we were worried about some troubling symptoms Keegan has been having lately.  Thank you so much for your prayers about it today.  They really mean so much more than we can say.  We take Keegan's...

Well, I suppose this makes this a real blog and not another health journal for Keegan!  My friend, Abby, "tagged" me in a photo game.  Here are the rules:1. Open your first photo folder on your computer.2. Scroll to the 10th picture.3. Post that picture...

Two years ago today, we were preparing to transport our one-week old son on ECMO to the heart catheterization labs to determine if his little lungs were capable of supporting a new heart. Today was the day we placed Keegan’s life in the hands of...

After writing the below post last night, Gray commented that it was going to "scare a lot of people", and it probably did. I know it's not the first post to do so. I thought a lot last night about why we have this journal...

Just wanted to let you know that new pictures are up on Keegan's photo site. Check out all the fun he's been having this month at home, and be sure to leave him a message of encouragement! We have cardiology clinic all day tomorrow and...

Keegan's follow-up appointment was pushed to tomorrow. Monday was a state holiday (Patriot's Day, running of the Boston Marathon), so the hospital was actually closed. Preliminary reports from Keegan's liver biopsy came back this afternoon, but we don't know much about them. Our doctor said...