Another long day and one coming up tomorrow too. Not much energy or time to update tonight, as Keegan is very restless.Keegan made it to the scanner for an MRV (magnetic resonance venogram) of his torso and an MRA (magnetic resonance angiogram) and images of...
A long day. Keegan's old port is out, but it was a long, long day, indeed.We woke up this morning to a line that would flush and work but not draw blood. Hematology/oncology was consulted; they deemed the line safe to use, but we could...
As I mentioned briefly last night, the staph epi bacteria has resurfaced in Keegan's central line, which caused him to have another MAS flare. We have successfully kept the flare to a low roar with yet another steroid pulse. Unfortunately, the infection means that Keegan's...
That's what it looks like at this point. See post below for reference. We should know more tomorrow about a plan, so I will update with more detail then. Until then, this about sums up how Keegan and the rest of us feel at this...
Keegan spiked another fever last night and was admitted to the cardiac floor at Children's again this morning. His 32nd hospital stay in four years. This had been the longest Keegan was at home since October 2010. This fever cycle actually started Friday, but his...
I'm going to have to take a break from the blog for a little bit. The first reason is a technical one. We are mostly staying with my parents this week because we are finally, finally having the majority of the inside of our house...
The day before my gallbladder surgery we made a trip to the Arboretum to see the Chihuly exhibit. I would gush emphatically about the artwork, but I think that I'd rather just let it speak for itself....
Keegan isn't a fan of holidays, it seems. He starting throwing up yesterday afternoon. He finally got a break and some sleep around 2am. Looks like a little stomach bug. This threw a wrench into our hopes for a relaxing, fun Independence Day. Audrey was...
Still trying to find some time (and brain power) to write a real, well-written, thought out update here. I didn't want to leave anyone who may actually still be following this little blog hanging. First, Audrey is fully recovered. It seemed to be a less-than...
I intended to write a detailed update tonight about my recovery from surgery and Keegan's report from transplant clinic today. But unfortunately, we came home from the hospital with Keegan this afternoon to find Audrey throwing up with a low-grade fever and feeling pretty puny....