13 May Home
Keegan was discharged home today. I think it's safe to say we are all uneasy about how long it will last, but that is surely no reason to stay in the hospital. For tonight, we are setting our short-term goals at longer than 2...
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11 May Shooting for Saturday
Keegan continues to be his usual enigma-wrapped-in-a-riddle self. There was an error in his TPN last night, so after much discussion (including with the transplant cardiologist on service directly calling our room to go over his decision...
09 May Brewing?
It's been an interesting couple of days around here. My hives continued to worsen and spread to my face, so now Keegan's not the only one on steroids. They do seem to be less angry today though, so hopefully the meds will nip it in...
07 May Quiet Weekend
Keegan had a pretty quiet weekend in the hospital. He had visits from Jenni and Mindy (his friend from the ICU, Tucker's mom) on Friday, one from Mamie, BD, Audrey, Alex, Chum, Poppy, and Pops on Saturday, and one from our friend Stephanie and baby...
04 May Waiting, waiting
I'm being a bad blogger, I know. I apologize to all of Keegan's faithful followers and to my future self who looks to this blog to remember medical details that have since fled my mind. I just don't have the energy in me to hash...
02 May Silent scream
I managed to keep my cool today, but I have been silently screaming all day. I'm mad.Mad at many things both controllable and not. The cultures all grew out our old friend from a few years ago, staph epi. So far, yesterday's culture is still...
01 May Line infection
Just when you think it can't get worse, Sunday's culture also grew back. Keegan does have a line infection. I will update more tomorrow. There are a lot of decisions to make right now. If there is a worst time for a line infection, this...
30 Apr Tea party
Audrey threw a little tea party for her babies while I packed up our bags for this hospital stay. These pictures were too cute not to share tonight. Hope they bring a smile to you the same way they did for me! This just tickles...
29 Apr On second thought
A call from the transplant team at 5:30am on a Sunday is never good. Evidently, the culture from yesterday grew back positive too. It's quite confusing due to the nature of the specific organism that keeps growing out, but we are hoping that it is...
28 Apr Slowing it down
We did it! The heart transplant and rheumatology teams reacted quickly to this flare, and we slowed it down dramatically. Keegan and Gray spent all morning in the Legacy ER. We redrew labs and blood cultures. Every level we would expect to change in...