Let me start out by saying a big, heartfelt thank you to all of you for your support and outpouring of love in response to Keegan's autism diagnosis. I promise to update more about all the testing he went through and the doctors' decisions soon, but...
Well, we've had a pretty crappy week. In too many ways. Since I don't want to go into all that tonight and to have a better ending to the week for the kids, we made one last attempt at a Christmas outing before school lets out,...
Rockin' the dress, slippers, and Christmas book as a purse look.These little doors are so fun to close again every day and watch Mama have to reopen them.Me: "Audrey, that's your Advent calendar. Your chocolate at dinner each night helps us count down to Christmas!"Audrey: "What?...
Yesterday, Mamie and Big Daddy treated Keegan and Audrey (as well as me, Gray, and Alex) to breakfast with Santa Claus at Neiman's. Alex and I did this every year growing up, and we have been looking forward to being able to do it with...
Keegan did pretty well through his cath and cardiac work-up last Thursday. His biopsy results were great - zero evidence of rejection. His antibody levels have weakened, and his coronaries show no further damage from the antibody problems of the late spring. All wonderful news!...
I'm sorry for the delay in updates. I needed to take a short break from posting, but I'm hoping to get back into it soon. Not tonight though because we have to be downtown at the hospital with Keegan at 7am tomorrow to be admitted...
Home and together with family and marvelous food for Thanksgiving. Just about everything we could ask for this year.We pray that it was the same for you and yours. I am very well aware of how many blessings have come our way this year. Unfortunately,...
How does the saying go? If it's not one thing, it's another? Yeah. So, last night Gray and I ended up leaving an absolutely lovely wedding reception (congratulations, Seth & Sheradon!) to go to the ER because I had a gallbladder attack. This was my...
Today, we had a little playdate at the Arboretum with our friend, Rylynn. We are so thankful that Keegan and Ry are both outpatient. Our fervent prayer is that they both stay that way, so that we can have more mornings like today....
1. Keegan's ferritin level is down (which is encouraging) but not near what I would have expected with double doses of anakinra all weekend long - 500. I don't have the full set of labs yet to know the whole picture, nor did I hear...