I honestly have no idea what to title these posts anymore. As anyone who has read this blog for any piece of time has probably noticed, I am not really in the blogging/journaling "mood", as it were, lately. There are a variety of reasons. None...
Keegan's ferritin was down just enough to keep him home!! A better post to follow with details. Thank you SO much for all the prayers. We are so grateful for God's healing hand and the love of family and friends. - Posted using BlogPress from...
We received Keegan's lab results from yesterday earlier today. Unfortunately, Keegan is having a flare of the HLH/MAS. His ferritin level (an inflammation marker) jumped from 455 last Tuesday to 15,000 yesterday. Normal levels are usually under 75. 10,000 is usually the cut-off to start...
Keegan was discharged home yesterday afternoon. His fever did not return, and he woke in a decent mood. His labs stayed about the same, although his platelets continued to fall. It isn't reasonable to sit around inpatient waiting on labs to get better. As a...
Keegan is still inpatient. He spiked another fever this morning, but once again, it broke on it's own. He ate a little more today and seemed to be feeling pretty good until dinner time. He refused to eat all but a few bites and got...
Guess we didn't have to wait that long to find out if Audrey really had a stomach virus or not. Keegan started throwing up last night. No surprise there. The 101+ temperature this morning was different, though. The team admitted him to the hospital this...
Last night, Audrey was fighting some pretty bad tummy problems. She was throwing up for several hours before she finally settled. The only place she seemed comfortable was on the floor of her room. So there the two of us stayed all night long. Poor...
In preparation for Halloween, we hit up the pumpkin patch at Storybook Ranch last week.Back in the saddle againAudrey's first pony rideHay mazeAudrey and Ms. Kelley, Gage and Ainsley's mom. Audrey became very good friends with Kelley and Abby while we were gone. I love...
Going to bed nervous tonight...
It's hard to believe that it's been almost three weeks since Keegan was discharged from Children's Hospital Boston. I realize that I never wrapped up our pictures and final tidbits from discharge day and our final appointment day. Here's a little love for our home...