Not a lot new to share today. Keegan had a pretty quiet end/beginning of his week. His labs on Sunday continued on a track that makes us very antsy. Are we seeing the beginnings of another flare or a reaction to the IV iron from...
I apologize for the delay in posts. The last few days have been quite busy here in Boston, both with Keegan's care and discharge planning. Yup, you heard me right. Lest we get ahead of ourselves though, I should start with how Keegan has been...
Today marked four weeks of Keegan being inpatient in Boston. What a roller coaster these four weeks have been! I can't believe that after years of looking for something, anything, to tie all of the pieces of Keegan's picture together, we are finally on the...
I'm just a touch behind in posting about it, but Audrey has been going to "school" or Mother's Day Out while we have been gone. The doctors at home thought sending Audrey to school was too much of an infection-risk for Keegan while we were...
Keegan is making baby steps of improvement each day. His labs have been up and down, but that is not unexpected at this point. We are doing our best to make small changes each day, so that he handles it better and is able to...
He may not be "out of the woods" yet, but Keegan is out of the ICU! Will update more tomorrow. For tonight, we are asking for prayers for sleep! Sleep for Keegan and our buddy, Rylynn. Keegan hasn't slept but about 3 hours...
I'm not quite ready to label a post "stable", so "steady" will work for now. His labs were up and down, again trending back to his old cytopenias. I'm not sure anyone believed that was something we could correct for good. We are just hoping...
It's quite surreal to sit in the cardiovascular ICU four years after our lives changed forever. I don't think I ever fooled myself into believing that life was going to be perfect after transplant, but I never in a million years have imagined where this...
Another long day in the ICU. I can't quite get an eloquent post up tonight. Just wanted to share a few things:Bleeding seems to have stabilized without any more IV clotting factors today. His blood counts did drop to critical levels this...
Keegan's bleeding has slowed down significantly this morning, after 18 hours of nurses, doctors, Gray and me all taking shifts holding pressure on the site. We ended up having to give him two different types of clotting factors to stop it. So far, we haven't...