Keegan was transferred to the cardiovascular ICU here in Boston this afternoon. We were able to stop the bleeding from his bone marrow biopsy site last night for a little while. It started up in earnest gain around 11am, and it hasn't stopped since then....
I really, really want to write a good update that explains everything that's going on. I hoped that I would have had time to do so tonight, but things have just been too hectic. I'm not sure my brain can put it all together, but...
I don't even know where to start this update. It will be a brief one for tonight. Keegan is not doing well. He had a very rough day of high temperatures. The IVIG we gave him last night did not stop the inflammation occurring in...
I know I was sleepy writing last night's post. Guess I didn't realize how badly until I read it again just now. Sheesh. Pardon my poor grammar there.Tonight, I'm just as tired, but it's going to be a long night ahead. For those reasons, I'm...
Keegan had a rather busy day. Our suspicion that the fever wasn't going to really follow a "cycle" anymore, but rather become one constant fever, appears to be true. He had a brief reprieve yesterday afternoon, but he came back up to the high 101s...
It would be lovely to say that Keegan had an awesome fourth birthday. But I can't. It did end better than it started, so that is something to be thankful for, I suppose. Last night, he had another rough night of 103-104 degree temps with...
Last night, I was marginally hopeful that Keegan's latest fever cycle (#13) would break overnight. I was wrong. Very wrong. He had two 104 spikes overnight requiring IV tylenol, and once again, he did not come below 100.5 during the day. He did spike up...
This was day five of this fever cycle. Keegan is really keeping us all on our toes. This one came on more slowly than before but stayed higher for longer than any previous fever cycle. Another very rough night last night followed by a rough...
I have got to be more careful about what I post. Never a good idea to tempt fate with putting something in writing.The great "oral tylenol + ibuprofen" experiment was an epic fail last night. Other than the night after Audrey's birthday party, this was...
I apologize in advance, but this is going to be a short post. I will try to round it out a little more tomorrow when I have a little more energy. Just didn't want to leave y'all hanging.Keegan's thirteenth fever started Tuesday, but the high...