Brilliant title, I know. Keegan had a pretty good Labor Day for being in the hospital. He went outside and played in the playroom. His port appears to be doing well, so there was no need to reassess his line situation since losing the PICC...
There truly is never a dull moment with Keegan. Never an opportunity to have just a normal, fun or relaxing weekend. There is a small playground at the hospital. Friday afternoon when we finally convinced him to get out of bed, we showed him the...
Keegan's fever broke early in the morning today. He was amiable but refusing to leave bed for most of the day. All in all though, it ended up being a pretty happy Friday. We had our first big meeting with GI today. As always, Dr....
Well, we made it back to Boston. It was a very long day preceded by a very long night. Keegan's fever returned Tuesday morning, and it really hit him hard overnight. He could not get comfortable, even with IV tylenol, and was awake from 1:30am...
I hesitate to even say it, but it looks like we are good for Boston tomorrow. I just got a call from the transplant cardiologist there (yes, the actual doctor!), and she said they are ready for Keegan. The rest of the day will be...
I realized my last post probably didn't make much sense unless you happen to keep up with our twitter or Facebook feeds. I intended to write a nice, well thought out post tonight. However, Keegan has been moaning/crying/rolling around in what might be GI pain...
Just a quick note to say Keegan is back at home while we wait on hurricane Irene to clear the east coast. Insurance approval for travel is complete. (Yippee!!) if not for the storm, we would be in Boston by now. The goal is...
Remember how I mentioned in the last post that if the fever went any longer, we would be in uncharted territory? Well, welcome to the wild. If we felt lost before, that feeling is magnified tenfold as this fever has started to morph in front...
Today marked another day of fever for Keegan. Last night was not easy on him. Consistently in the 103s. After another IV tylenol dose at 6am, he "simmered" at 99-100.5 all day. At bedtime, he was at 100.8. This was a marked change from all...
Dear Family and Friends of the Harrison Family, We have decided that it will be extremely beneficial if we extend the Care Calendar to resume providing meals for the Harrisons. As we mentioned before, our family is well aware that having meals provided even when...