I miscalculated last week. Keegan's fever this weekend is the 11th overall. The 6th since we started the steroid pulse. It seems to have been about the same as last weekend's so far. There was a few hours earlier today where we got pretty worried...
A state of uncertainty.I'm not exactly sure what I should or can update about at this point. Nothing is really certain. We don't know anything new. The fact that we don't have a single doctor/specialty that is the "owner" of Keegan's issues has become more...
I wish I was ready to write a post about last week and our plan (or lack there of at this time), but honestly, Gray and I just had an opportunity to really hash it all out between ourselves last night. We were too preoccupied...
Ok, so no one is really surprised, but Keegan's fever is back again. This is the 5th fever since we started the steroid pulse. Aside from the three week break at the beginning of the pulse, this is the 9th consecutive, weekly "mystery" fever. We...
Both of our two big meetings of the week, with GI and immunology respectively, have left us as uncertain, if not more, than we were before about what the next step is with Keegan. If that's possible. We really need some time to process it...
That has been the theme of the last few days here at the Harrison house. Keegan's fever held out until early Saturday morning around 4am. This was a break from what had become his "norm" of the fever coming every 6-7 days. It "should" have...
I found some pictures from the last few months that I hadn't had the opportunity to share.A little random cuteness from the Bug and Ladybug to make you smile!This was the week before the big surgery to remove Keegan's port from the subclavian artery.Compare this...
Because I don't feel like an update, and I know some people (*AHEM!!*) are waiting ever so patiently...
Dear Family and Friends of the Harrison Family, As you are well aware, the Harrison have been enduring a tumultuous road lately. In an effort to give this extraordinary family some sort of relief, we have set up a Care Calendar for you...
Goodness, this girl! She is light years faster on this just over the last few days. She even slides out as she takes corners. Audrey may be fearless on this little wheely ladybug, but confidence is a severe issue on her own two feet. Today...