Keegan did ok through his colonoscopy and endoscopy yesterday. A lot of bleeding, much like the last scope in June, but otherwise he handled it well. As we have come to expect, they didn't visually see anything remarkable. The only thing that looked strange was...
Keegan's fever does seem to be over for this week. That doesn't mean he got a break today though. This afternoon, he had a repeat CT scan of his chest and an ultrasound of his abdomen. On first glance, there did not appear to be...
I think (knock on wood) that Keegan's fever has finally broken through this cycle. He had a fairly low-grade temp (100.9) overnight, but the last spike this morning was just shy of 104. That brought the vaso-constricting, retching, and vomiting back. Luckily, the IV Tylenol...
Keegan's fever is back for the third week in a row. I can't say we are surprised. We were also right when we predicted that the fevers would get stronger and harder on Keegan. Last night around 3am, we realized he was at 103.7. It...
I was finally uploading the last few months of photos to print today and found this little video from May from one rare day that Keegan was not in the hospital. Thought I would share, since it brought a smile to my face. My two...
Once again, I feel like I need to apologize for not updating this blog often enough or well enough. At one time, this blog was therapeutic and even a cathartic outlet for me, as well as a way to keep our family, friends, and Keegan's...
Today, we ventured downtown to the hospital for a transplant nursing visit to keep eyes on the bruised/bleeding port, a PICC line dressing change, and a play therapy appointment. The port looks about the same, perhaps somewhat better, than yesterday. It's the strangest thing, and...
Ended up in the ER this evening with Keegan again. His port (that is not being used) started to turn purple and swell under the skin today. Literally looks like it is about to pop straight out of his skin. Quite worried about it when...
I have too little brain power left to post much of an update. Just wanted to say that Keegan managed to stay home and out of the hospital through this recent fever. His temperature rose to 102.9 overnight and stayed pretty high until mid-afternoon. Through...