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Keegan's fever.  It's back.  Ugh. Last night for several hours, Keegan would momentarily start crying and moaning in his sleep, intermittently saying "help, Daddy!"  I think it just about completely broke Gray's heart.  It was hard to turn off my mama instinct that something was...

I really should stop promising a time or date for a post.  Sorry about that. After a whirlwind day yesterday and not getting up from anesthesia until almost 5pm, Keegan was discharged last night - in rush hour traffic, of course.  But the important thing...

Keegan just came back to his room after having a PICC line placed in his arm.  This was his 40th round of general anesthesia.  He's not even 4 years old.  This time, he had a little oxygen dependency for about an hour afterward, but it...

This inpatient stay, that is.  Keegan's port is still leaking.  It's rather disgusting actually.  We rested it Monday.  Tuesday, surgery ran a dye study that showed the port is in tact (surprise), and they don't know what else to do.  We had to access the...

Keegan was admitted to the hospital again last night.  After the reaccess of his port at midnight on Wednesday, it continued to bleed and have discharge of some kind into the dressing.  He woke up Sunday morning scratching all around the dressing and at the...

I know I promised to post again with the rest of the news about Keegan's medical issues.  I didn't get to it last night, and since I don't have the energy tonight, I just wanted to post an apology/excuse.  Both kiddos have been having sleep...

We are still at home.  A weekend at home together.  It was nice to be able to say that again.  Keegan has been home for four whole days, and we're hoping to stay here for a little bit at least.  He has his good moments...

It was a very long day with a lot of information to process.  The team kinda wanted to keep him another day, but we decided to come home tonight.  Even though it was another rush-hour discharge that brought us home right before bedtime.Keegan's heart function...

We finally got an IV in Keegan's left hand after a good dose of valium.  Labs, 2 x-rays, and an initial surgical consult later, he was finally asleep for the night around midnight.  At one point, the IV team looked up as he fought them...

I couldn't make this you-know-what up if I tried!  A short recap of the last four days:FRIDAY: In the morning, I went to the dermatologist due to what appeared to be a breakout of hives all over my torso.  To be sure it wasn't infectious...