Keegan is not necessarily doing any better. A few more smiles today and much less bleeding. But we did decide to bring him home this afternoon. We know that giving him blood would make him feel better, but his counts have been stable the last...
Another quick update again tonight. I am going home tonight to get ready for a presentation I'm giving to the Executive Committee of the Solid Organ Transplant Center here at Children's tomorrow. If I get approval from the Center's leadership, the program will be a...
I don't really have the energy for a big post tonight. Just wanted to say that Keegan did have another colonoscopy today. They didn't see a lot visually throughout his colon and intestines. However, the tissue is so sensitive over time that he suffered a...
Keegan was, as we said earlier, admitted back to the hospital yesterday morning. He struggled through Audrey's party and really declined quickly overnight. He maintained a 103+ degree fever throughout the night and started retching and throwing up in the middle of the night. Evidently,...
I would say Audrey's first birthday party was really wonderful. We were all so happy to be together, and she just absolutely was the star of the show. I wish Keegan had felt better and been able to enjoy himself. All in all though, we...
See for yourself, but I think Audrey had a pretty good time at her first birthday party!More photos to follow tomorrow! Keegan is struggling but still home. Thank you for your prayers....
Today is Audrey's birthday party. In just one more hour. Unfortunately, Keegan spiked another fever last night. 103.2. It may not be too surprising, but it is certainly disappointing. We took him to the ER at 3:30am for labs and blood cultures. They gave him...
For every one of Keegan's birthday parties, we've done some sort of fundraising in lieu of asking for gifts. The first year, we collected hundreds of books to donate to the newly opened library at the Children's Legacy campus. We donated 3 wagons to the...
Keegan was discharged last night. He is scheduled to be readmitted next Wednesday for the steroid pulse. That is, assuming that Keegan makes it that long. If he spikes a fever this weekend, we are going to try to manage him at home, if at...
Our little Ladybug is ONE whole year old! My goodness!The team on the cardiology floor reserved a conference room for us to have a little celebration for her this evening. It wasn't an ideal way to spend her birthday, but I don't think she would...