26 Apr Easter Fun
A week ago, the "Easter Bunny" (aka Aunt Alex, who graciously borrowed a costume and played along) came to dye Easter eggs with Keegan. Very excited to make the dye...
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25 Apr Overdue update
At the risk of sounding redundant, I'm not sure where to start this post and apologize for not doing so earlier. (Oh, that was redundant? Well...
23 Apr Booty-Scootin’
Witness the booty-scootin' talent of one Audrey Harrison. And to think, I figured she would be the normal one! She also seems to have inherited my habit of biting my lip while concentrating. I'm so sorry, ladybug. Make video montages at www.OneTrueMedia.com...
19 Apr Is it really just Monday?
I kinda wish I knew how to start this update. It was not the best of days today.We started with the upper GI and small bowel follow-through. That was only after a very long, sleepless night by all four members of our family. But I...
18 Apr Whew
That's my general sentiment at the end of just about everyday and when sitting down to think about writing this post! The "plan" from the last update is still in place, but not all the pieces have been set into motion yet. Here's a little...
13 Apr A New Plan
Today was quite productive in getting a plan put in place for addressing Keegan's GI problems. We started bright and early with a phone conference with our team in Boston. After tossing around some ideas with our GI doctor there, he contacted our doctor here...
12 Apr And then there was Audrey
Poor Miss A seems to get left out of this little corner of the bloggy world too often. It's almost always about Keegan, and when time alots, well...
11 Apr News and a picnic
I really, really do promise that one day soon I will have time to sit down and write an update that is in depth and detailed. After getting the kids down, eating dinner, cleaning up, pulling meds, making formula, mixing TPN and lipids, hooking Keegan...
07 Apr In the moment
That pretty much sums up how our days have been lately. Living in the moment and trying to get through each day. There is no getting ahead at this point. My only sense of accomplishment each day is if I don't end up feeling as...
04 Apr A Thank You
Keegan came home Friday afternoon from the hospital, yet again. His blood cultures thankfully never grew out any bacteria. Who knows what that fever was about. We had a very reassuring discussion with neurology on Friday morning that convinced us that waiting to close the...